COMPUTER-MEDIATED HEALTH COMMUNICATION AND LENNOX-GASTAUT SYNDROME: UNDERSTANDING SOCIAL SUPPORT AND INFORMATION SHARING IN A CLOSED, RARE-DISEASE FACEBOOK SUPPORT GROUP

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dc.contributor.advisorAnderson, Lindsey Ben_US
dc.contributor.authorSanInocencio, Christinaen_US
dc.contributor.departmentCommunicationen_US
dc.contributor.publisherDigital Repository at the University of Marylanden_US
dc.contributor.publisherUniversity of Maryland (College Park, Md.)en_US
dc.date.accessioned2022-02-02T06:32:03Z
dc.date.available2022-02-02T06:32:03Z
dc.date.issued2021en_US
dc.description.abstractComputer-mediated health communication (CMHC) has increasingly played a role in connecting individuals across the globe to health information and online support groups. For individuals living with a rare disease, and their caregivers, CMHC can serve as a critical tool for social support and information seeking, while addressing feelings of isolation due to the low prevalence of living with a rare disease. Over the past two decades, there has been an increase in scholarship surrounding CMHC and social support. However, scholarship within the context of CMHC in rare diseases has only increased within the past few years and lacks an explicit connection to important theoretical constructs in both communication and public health. Thus, this dissertation aims to explore the intersection of CMHC, interpersonal communication, and social support among caregivers who use Facebook groups as a CMHC tool for Lennox-Gastaut Syndrome, a rare, catastrophic epilepsy syndrome. Long-standing communication theories, including social penetration theory and communication privacy management, guide the theoretical framework for this dissertation while theoretical constructs from public health, including social support and health literacy are addressed.en_US
dc.identifierhttps://doi.org/10.13016/gjps-ehur
dc.identifier.urihttp://hdl.handle.net/1903/28320
dc.language.isoenen_US
dc.subject.pqcontrolledCommunicationen_US
dc.subject.pqcontrolledPublic healthen_US
dc.subject.pquncontrolledComputer-mediated health communicationen_US
dc.subject.pquncontrolledHealth Literacyen_US
dc.subject.pquncontrolledRare Diseaseen_US
dc.subject.pquncontrolledSocial Supporten_US
dc.titleCOMPUTER-MEDIATED HEALTH COMMUNICATION AND LENNOX-GASTAUT SYNDROME: UNDERSTANDING SOCIAL SUPPORT AND INFORMATION SHARING IN A CLOSED, RARE-DISEASE FACEBOOK SUPPORT GROUPen_US
dc.typeDissertationen_US

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