Browsing by Author "Quinn, Sandra Crouse"
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Item African Americans' views on research and the Tuskegee Syphilis Study(2001) Freimuth, Vicki S.; Quinn, Sandra Crouse; Thomas, Stephen B.; Cole, Galen; Zook, Eric; Duncan, TedThe participation of African Americans in clinical and public health research is essential. However, for a multitude of reasons, participation is low in many research studies. This article reviews the literature that substantiates barriers to participation and the legacy of past abuses of human subjects through research. The article then reports the results of seven focus groups with 60 African Americans in Los Angeles, Chicago, Washington, DC, and Atlanta during the winter of 1997. In order to improve recruitment and retention in research, the focus group study examined knowledge of and attitudes toward medical research, knowledge of the Tuskegee Syphilis Study, and reactions to the Home Box Office production, Miss Evers' Boys, a fictionalized version of the Tuskegee Study, that premiered in February, 1997. The study found that accurate knowledge about research was limited; lack of understanding and trust of informed consent procedures was problematic; and distrust of researchers posed a substantial barrier to recruitment. Additionally, the study found that, in general, participants believed that research was important, but they clearly distinguished between types of research they would be willing to consider participating in and their motivations for doing so.Item Attributes of researchers and their strategies to recruit minority populations: Results of a national survey(2012) Quinn, Sandra Crouse; Butler, James; Fryer, Craig S.; Garza, Mary A.; Kim, Kevin H.; Ryan, Christopher; Thomas, Stephen B.Despite NIH mandates for inclusion, recruiting minorities is challenging for biomedical and public health researchers. Little is known about how attributes of researchers affect their choice of recruitment strategies. The purpose of this study was to address this gap by examining how use of recruitment strategies relates to other researcher characteristics. To do this, we conducted an online survey from May to August 2010 with researchers (principal investigators, research staff, and IRB members) in which we measured the number and types of recruitment strategies utilized, along with other characteristics of the researchers and their research. We identified two clusters of researchers: comprehensive researchers who utilized a greater number and more diverse and active recruitment strategies, and traditional researchers, who utilized fewer and more passive strategies. Additional characteristics that distinguished the two groups were that comprehensive researchers were more likely than traditional researchers to 1) report racial and ethnic differences as one of their specific aims or hypotheses, 2) receive federal (CDC and NIH) funding, 3) conduct behavioral or epidemiological research, and 4) have received training in conducting research with and recruiting minorities. Traditional researchers, on the other hand, were more likely to conduct clinical research and a greater (though non-significant) percentage received funding from pharmaceutical sources. This study provides a novel description of how researcher attributes are related to their recruitment strategies and raises a number of future research questions to further examine the implications of this relationship.Item Belief in AIDS as a Form of Genocide: Implications for HIV Prevention Programs for African Americans(1997) Quinn, Sandra CrouseThe purpose of this article is to examine factors associated with belief that AIDS is a form of genocide and trust in federal government reports on AIDS in a cross-sectional sample of 1,054 black church members. Reports in both the professional literature and mass media have documented fears that AIDS is a form of genocide unleashed on black Americans, and distrust of reports on AIDS.Results from this study demonstrate that a substantial number of participants believe that belief in genocide is not accounted for by levels of AIDS knowledge. Belief in genocide may be a modern urban legend that need not be a barrier for AIDS education. Implications for development of AIDS education sensitive to the cultural context of African Americans are described.Item Breaking down the monolith: Understanding flu vaccine uptake among African Americans(Elsevier, 2017-11-11) Quinn, Sandra Crouse; Jamison, Amelia; An, Ji; Freimuth, Vicki S.; Hancock, Gregory R.; Musa, DonaldBlack adults are significantly less likely to be immunized for seasonal influenza when compared to Whites. This persistent disparity contributes to increased influenza-related morbidity and mortality in the African American population. Most scholarship on vaccine disparities has compared Whites and Blacks. Employing Public Health Critical Race Praxis, this study seeks to shift the focus to explore differences within the Black population. Utilizing a nationally-representative 2015 survey of US Black adults (n = 806), we explore differences by gender, age, income, and education across vaccine-related measures (e.g., perceived risk, knowledge, attitudes) and racial factors (e.g. racial salience, racial fairness, perceived discrimination). We also explore differences by vaccine behavior in the past five years among those who vaccinate every year, most years but not all, once or twice, and never. Greater frequency of flu vaccine uptake was associated with better self-reported vaccine knowledge, more positive vaccine attitudes, more trust in the flu vaccine and the vaccine process, higher perceived disease risk, lower perceived risk of vaccine side effects, stronger subjective and moral norms, lower general vaccine hesitancy, higher confidence in the flu vaccine, and lower perceived barriers. Logistic regression results highlighted other significant differences among the groups, emphasizing areas to target for improved vaccination rates. We find great diversity within the Black community related to influenza immunization decisions, highlighting the need to “break down the monolith” in future research.Item Building Community Trust: Lessons From an STD/HIV Peer Educator Program With African American Barbers and Beauticians(2002) Lewis, Yalonda R; Shain, Lara; Quinn, Sandra Crouse; Turner, Katherine; Moore, TimothySexually transmitted diseases (STDs), HIV, and AIDS disproportionately affect the African American community. In 1999, the rates of gonorrhea and primary and secondary syphilis among African Americans in the United States were approximately 30 times greater than those rates in Whites. Although African Americans represent only 12% of the population nationwide, they constitute 37% of the cumulative AIDS cases. In North Carolina’s Durham County, African Americans accounted for 88% (553) of the HIV cases reported as of December 2000. There remains a demand for prevention efforts that are culturally relevant, incorporating the social norms and values of the African American community. Through the Barber and Beautician STD/HIV Peer Educator Program of the Durham County Health Department’s Project StraighTalk (PS), local barbers and beauticians provide condoms, educational materials, and education to their clients about STDs/HIV. In collaboration with PS, Lewis and Shain performed a needs assessment of the program, including interviews with stylists and clients, to inform program enhancement and materials development. This article describes the needs assessment process, with a specific focus on the challenges of working closely with a community and the lessons learned.Item Characterizing Trends in Human Papillomavirus Vaccine Discourse on Reddit (2007-2015): An Observational Study(JMIR Publications, 2019) Yama, Yuki; Hu, Dian; Jamison, Amelia; Quinn, Sandra Crouse; Broniatowski, David A.Background: Despite the introduction of the human papillomavirus (HPV) vaccination as a preventive measure in 2006 for cervical and other cancers, uptake rates remain suboptimal, resulting in preventable cancer mortality. Social media, widely used for information seeking, can influence users’ knowledge and attitudes regarding HPV vaccination. Little is known regarding attitudes related to HPV vaccination on Reddit (a popular news aggregation site and online community), particularly related to cancer risk and sexual activity. Examining HPV vaccine–related messages on Reddit may provide insight into how HPV discussions are characterized on forums online and influence decision making related to vaccination. Objective: We observed how the HPV vaccine is characterized on Reddit over time and by user gender. Specifically, this study aimed to determine (1) if Reddit messages are more related to cancer risks or sexual behavior and (2) what other HPV vaccine–related discussion topics appear on Reddit. Methods: We gathered all public Reddit comments from January 2007 to September 2015. We manually annotated 400 messages to generate keywords and identify salient themes. We then measured the similarity between each comment and lists of keywords associated with sexual behavior and cancer risk using Latent Semantic Analysis (LSA). Next, we used Latent Dirichlet Allocation (LDA) to characterize remaining topics within the Reddit data. Results: We analyzed 22,729 messages containing the strings hpv or human papillomavirus and vaccin. LSA findings show that HPV vaccine discussions are significantly more related to cancer compared with sexual behavior from 2008 to 2015 (P<.001). We did not find a significant difference between genders in discussions of cancer and sexual activity (P>.05). LDA analyses demonstrated that although topics related to cancer risk and sexual activity were both frequently discussed (16.1% and 14.5% of word tokens, respectively), the majority of online discussions featured other topics. The most frequently discussed topic was politics associated with the vaccine (17.2%). Other topics included HPV disease and/or immunity (13.5%), the HPV vaccine schedule (11.5%), HPV vaccine side effects (9.7%), hyperlinks to outside sources (9.1%), and the risks and benefit of HPV vaccination (8.5%). Conclusions: Reddit discourse on HPV vaccine encompasses a broad range of topics among men and women, with HPV political debates and cancer risk making up the plurality of the discussion. Our findings demonstrated that women and men both discussed HPV, highlighting that Reddit users do not perceive HPV as an issue that only pertains to women. Given the increasing use of social media as a source of health information, these results can inform the development of targeted online health communication strategies to promote HPV vaccination to young adult users of Reddit. Analyzing online discussions on Reddit can inform health communication efforts by identifying relevant, important HPV-related topics among online communities.Item COVID-19 Vaccines: Facts and Misconceptions(YouTube, 2021-02-09) Cortes, Tara; Berry, Sarah D.; Quinn, Sandra Crouse; Yukawa, MichiItem Ethics in public health research: protecting human subjects: the role of community advisory boards.(2004) Quinn, Sandra CrouseIncreasingly, researchers grapple with meaningful efforts to involve communities in research, recognizing that communities are distinct from individuals. We also struggle to ensure that individual participants in research are fully protected. Community advisory boards (CABs) offer an opportunity to adopt a relationships paradigm that enables researchers to anticipate and address the context in which communities understand risks and benefits, and individuals give consent. CABs provide a mechanism for community consultation that contributes to protecting communities and fostering meaningful research. Furthermore, CABs can help us to re-create informed consent as a process. It is critical that we conduct research to understand the role of CABs in the informed consent process.Item Framing a Transdisciplinary Research Agenda in Health Education to Address Health Disparities and Social Inequities: A Road Map for SOPHE Action(2006) Gambescia, Stephen F.; Woodhouse, Lynn D.; Auld, M. Elaine; Green, B. Lee; Quinn, Sandra Crouse; Airhihenbuwa, Collins O.the Healthy People 2010 goal of eliminating health disparities through its Strategic Plan. SOPHE held an Inaugural Health Education Research Disparities Summit, Health Disparities and Social Inequities: Framing a Transdisciplinary Research Agenda in Health Education, August 8 and 9, 2005. This article explains the process used at the Summit where more than 80 researchers, academicians, practitioners, and students from across the country convened to ask fundamental questions about health disparity associated with race and ethnicity and how a health education research agenda could help in eliminating these disparities. From this Summit, about a dozen questions and/or recommendations have been developed to frame our future discussions about health disparities. Through its Research Agenda Committee, SOPHE has developed a process of translation and dissemination, including community participation, review, dialogue, and action.Item Light on the Shadow of the Syphilis Study at Tuskegee(2000) Thomas, Stephen B.; Quinn, Sandra CrouseIn the 1940s, with the disclosure that Nazi doctors had conducted experiments on humans, the term research crime appeared for the first time. Most Americans believed such abuses could never happen here. On a hot day in July 1972, however, the national front-page news described an experiment sponsored by the U.S. government. In Macon County, Alabama, a large group of Black men had gone untreated for syphilis. Over 4 decades, as some of them died, the U.S. government went to great lengths to ensure that the men in the Tuskegee Study were denied treatment, even after penicillin had become the standard of care in the mid-1940sItem The Characteristics of Northern Black Churches with Community Health Outreach Programs(1994) Thomas, Stephen B.; Quinn, Sandra Crouse; Biingsley, Andrew; Caldwell, CleopatraOBJECTIVES. The Black church has a long history of addressing unmet health and human service needs, yet few studies have examined characteristics of churches involved in health promotion. METHODS. Data obtained from a survey of 635 Black churches in the northern United States were examined. Univariate and multivariate statistical procedures identified eight characteristics associated with community health outreach programs: congregation size, denomination, church age, economic class of membership, ownership of church, number of paid clergy, presence of other paid staff, and education level of the minister. RESULTS. A logistic regression model identified church size and educational level of the minister as the strongest predictors of church-sponsored community health outreach. The model correctly classified 88% of churches that conduct outreach programs. Overall, the model correctly classified 76% of churches in the sample. CONCLUSIONS. Results may be used by public health professionals and policy makers to enlist Black churches as an integral component for delivery of health promotion and disease prevention services needed to achieve the Year 2000 health objectives for all Americans.Item The contributions of health communication to eliminating health disparities.(2004) Freimuth, Vicki S; Quinn, Sandra CrouseThe pressing need to eliminate health disparities calls on public health professionals to use every effective tool possible. Health communication, defined as the study and use of methods to inform and influence individual and community decisions that enhance health, was first recognized as a subset of the field of communication in 1975, when the Health Communication Division of the International Communication Association was founded.1,2 The National Communication Association formed a division of the same name in 1985. In 1997, the Public Health Education and Health Promotion section within the American Public Health Association formally recognized health communication as part of . . .Item The National Negro Health Movement: Lessons For Eliminating Health Disparities Today(2001) Quinn, Sandra CrouseFar too many of us trained in the health professions seek to address disparities in health status between communities of color and white Americans as if we are addressing a new problem. While there was little agreement on cause or solution, southern white physicians and black researchers such as W.E.B. DuBois documented health disparities in the early part of the 20th century.Item The National Negro Health Week, 1915 to 1951: A Descriptive Account(2001) Quinn, Sandra Crouse; Thomas, Stephen B.In 1914, Booker T. Washington, founder of Tuskegee Institute, viewed the poor health status of black Americans as an obstacle to economic progress and issued a call for "the Negro people... to join in a movement which shall be known as Health Improvement Week" (Patterson, 1939). Health Improvement Week evolved into the National Negro Health Week, observed annually for 35 years. This article provides an overview of the structure and activities of the National Negro Health Week and suggests implications for public health in the black community today.Item The Role of Community Advisory Boards: Involving Communities in the Informed Consent Process(2001) Strauss, Ronald P.; Sengupta, Sohini; Quinn, Sandra Crouse; Goeppinger, Jean; Spaulding, Cora; Kegeles, Susan M.; Millett, GregEthical research involving human subjects mandates that individual informed consent be obtained from research participants or from surrogates when participants are not able to consent for themselves.The existing requirements for informed consent assume that all study participants have personal autonomy; fully comprehend the purpose, risks, and benefits of the research; and volunteer for projects that disclose all relevant information. Yet contemporary examples of lapses in the individual informed consent process have been reported. The authors propose the use of community advisory boards, which can facilitate research by providing advice about the informed consent process and the design and implementation of research protocols. These activities could help reduce the number of individual informed consent lapses,benefiting study participants and the scientific integrity of the research in question.Item The Tuskegee Syphilis Study, 1932 to 1972: Implications for HIV Education and AIDS Risk Education Programs in the Black Community(1991) Thomas, Stephen B; Quinn, Sandra CrouseThe Tuskegee study of untreated syphilis in the Negro male is the longest nontherapeutic experiment on human beings in medical history. The strategies used to recruit and retain participants were quite similar to those being advocated for HIV/AIDS preention programs today. Almost 60 years after the study began, there remains a trail of distrust and suspicion that hampers HIV education efforts in Black communities. The AIDS epidemic has exposed the Tuskegee study as a histotical marker for legitimate discontent of Blacks with the public health system. The belief that AIDS is a form of genocide is rooted in a social context in which Black Americans, faced with persistent inequality, believe in conspiracy theories about Whites against Blacks. These theories range from the belief that the government promotes drug abuse in Black communities to the belief that HIV is a manmade weapon of racial warfare. An open and honest discussion of the Tuskegee Syphilis Study can facilitate the process of rebuilding trust between the Black community and public health authorities. This dialogue can contribute to the development of HIV education programs that are scientifically sound, culturally sensitive, and ethnically acceptable.Item The Urban Context: A Place to Eliminate Health Disparities and Build Organizational Capacity(2010) Gilbert, Keon L.; Quinn, Sandra Crouse; Ford, Angela F.; Thomas, Stephen B.This study seeks to examine the process of building the capacity to address health disparities in several urban African American neighborhoods. An inter-organizational network consisting of a research university, community members, community organizations, media partners, and foundations was formed to develop a community-based intervention designed to provide health promotion and disease prevention strategies for type 2 diabetes and hypertension. In-depth qualitative interviews (n = 18) with foundation executives and project directors, civic organization leadership, community leaders, county epidemiologist, and university partners were conducted. Our study contextualizes a process to build a public health partnership using cultural, community, organizational, and societal factors necessary to address health disparities. Results showed 5 important factors to build organizational capacity: leadership, institutional commitment, trust, credibility, and inter-organizational networks. These factors reflected other important organizational and community capacity indicators such as: community context, organizational policies, practices and structures, and the establishment of new commitments and partnerships important to comprehensively address urban health disparities. Understanding these factors to address African American health disparities will provide lessons learned for health educators, researchers, practitioners, foundations, and communities interested in building and sustaining capacity efforts through the design, implementation, and maintenance of a community-based health promotion interventionItem Toward a fourth generation of disparities research to achieve health equity(2011) Thomas, Stephen B.; Quinn, Sandra Crouse; Butler, James; Fryer, Craig S.; Garza, Mary A.Achieving health equity, driven by the elimination of health disparities, is a goal of Healthy People 2020. In recent decades, the improvement in health status has been remarkable for the U.S. population as a whole. However, racial and ethnic minority populations continue to lag behind whites with a quality of life diminished by illness from preventable chronic diseases and a life span cut short by premature death. We examine a conceptual framework of three generations of health disparities research to understand (a) data trends, (b) factors driving disparities, and (c) solutions for closing the gap. We propose a new, fourth generation of research grounded in public health critical race praxis, utilizing comprehensive interventions to address race, racism, and structural inequalities and advancing evaluation methods to foster our ability to eliminate disparities. This new generation demands that we address the researcher's own biases as part of the research process.