Skip to content
University of Maryland LibrariesDigital Repository at the University of Maryland
    • Login
    View Item 
    •   DRUM
    • Theses and Dissertations from UMD
    • UMD Theses and Dissertations
    • View Item
    •   DRUM
    • Theses and Dissertations from UMD
    • UMD Theses and Dissertations
    • View Item
    JavaScript is disabled for your browser. Some features of this site may not work without it.

    Spiritual Community Experiences of Families of Children with Disabilities

    Thumbnail
    View/Open
    OHanlon_umd_0117E_10866.pdf (475.0Kb)
    No. of downloads: 1512

    Date
    2009
    Author
    O'Hanlon, Elizabeth Ellen
    Advisor
    Beckman, Paula J
    Metadata
    Show full item record
    Abstract
    This mixed methods investigation examined experiences of families of children with disabilities in their spiritual communities. Using the Spiritual Community Experiences Inventory, fifty-eight parents rated importance of and satisfaction with clergy, various religious activities, and support received from clergy and spiritual community members. Families reported that participation in religious activities and support from clergy and members were important. Moreover, families were highly satisfied with these activities and support. As predicted, a significant relationship was found between frequency of attendance, amount of support, and satisfaction with activities and support. Only in the case of formal ceremonies was frequency/satisfaction relationship not significant. Parents described a variety of factors that influenced their level of satisfaction with spiritual community experiences. Families reported that participation was influenced by: (1) amount and quality of social interactions with other children and adults, (2) level of knowledge, training and understanding of staff and volunteers, (3) level and appropriateness of accommodations provided, and (4) degree to which their child's disability interfered with participation. Additionally, parents reported that their experiences were affected by availability of emotional and practical support targeted to their unique needs, existence of social support networks, level of acceptance and knowledge of community members and clergy about disability, and the value the religious community places on parental knowledge of disability. Parents did elaborate on negative experiences and lack of support, which led to their non-participation and in some instances to switching communities. Further testing and refining of the instrument is required to strengthen its reliability and validity, clarify ambiguities, and identify factors families believe are important to participation. Additionally, leaders of spiritual communities must identify needs of families of children with disabilities. By tapping families as "experts" and networking with other religious communities, disability groups, and agencies, they can better meet these families' needs.
    URI
    http://hdl.handle.net/1903/9910
    Collections
    • Counseling, Higher Education & Special Education Theses and Dissertations
    • UMD Theses and Dissertations

    DRUM is brought to you by the University of Maryland Libraries
    University of Maryland, College Park, MD 20742-7011 (301)314-1328.
    Please send us your comments.
    Web Accessibility
     

     

    Browse

    All of DRUMCommunities & CollectionsBy Issue DateAuthorsTitlesSubjectsThis CollectionBy Issue DateAuthorsTitlesSubjects

    My Account

    LoginRegister
    Pages
    About DRUMAbout Download Statistics

    DRUM is brought to you by the University of Maryland Libraries
    University of Maryland, College Park, MD 20742-7011 (301)314-1328.
    Please send us your comments.
    Web Accessibility