Minority Health and Health Equity Archive
Permanent URI for this collectionhttp://hdl.handle.net/1903/21769
Welcome to the Minority Health and Health Equity Archive (MHHEA), an electronic archive for digital resource materials in the fields of minority health and health disparities research and policy. It is offered as a no-charge resource to the public, academic scholars and health science researchers interested in the elimination of racial and ethnic health disparities.
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Item Providers’ Perceptions and Practices Regarding BRCA1/2 Genetic Counseling and Testing in African American Women(2011) Graves, Kristi D.; Christopher, Juleen; Harrison, Toni Michelle; Peshkin, Beth N.; Isaacs, Claudine; Sheppard, Vanessa B.Abstract available at publisher's web site.Item Awareness and Preferences Regarding BRCA1/2 Genetic Counseling and Testing Among Latinas and Non-Latina White Women at Increased Risk for Hereditary Breast and Ovarian Cancer(2011) Gammon, Amanda Dawn; Rothwell, Erin; Simmons, Rebecca; Lowery, Jan T.; Ballinger, Lori; Hill, Deirdre A.; Boucher, Kenneth M.; Kinney, Anita YeomansAbstract available at publisher's web site.Item Effectiveness of Pre-counseling Genetic Education Workshops at a Large Urban Community Health Center Serving Low-Income Chinese American Women(2011) Sim, Shao-Chee; Zhou, Xiaojie Diana; Hom, Laureen D.; Chen, Christine; Sze, RebeccaAbstract available at publisher's web site.Item Concurrent Use of Cultural Health Practices and Western Medicine During Pregnancy: Exploring the Mexican Experience in the United States(2011) Barragan, Deborah I.; Ormond, Kelly E.; Strecker, Michelle N.; Weil, JonAbstract available at publisher's web site.Item Forming State Collaborations to Diversify the Nation’s Health Workforce: The Experience of the Sullivan Alliance to Transform the Health Professions(2011) Mittman, Ilana Suez; Sullivan, Louis W.Abstract available at publisher's web site.Item Introduction to the Special Issue: Toward Diversity and Cultural Competence in Genetic Counseling(2011) Warren, Nancy SteinbergAbstract available at publisher's web site.Item Diversity and General Student Scholarship Recipient Essays: 2010 National Society of Genetic Counselors Membership Committee(2011) Liu, Tina; Patek, Kyla; Schneider, Kami WolfeAbstract available at publisher's web site.Item Attitudes and Beliefs of African-Americans Toward Genetics, Genetic Testing, and Sickle Cell Disease Education and Awareness(2011) Long, Katie A.; Thomas, Stephen B.; Grubs, Robin E.; Gettig, Elizabeth A.; Krishnamurti, LakshmananResearch among African-Americans indicates this population perceives sickle cell (SCD) to be a serious disease and sickle cell trait (SCT) screening an important intervention. However, studies have consistently demonstrated a lower than desired uptake of SCD education, inadequate knowledge regarding personal and family trait status, and a low perceived susceptibility of giving birth to a child with the disease. We examined general attitudes and beliefs regarding genetics and genetic testing including prenatal testing and newborn screening; we used this information as the foundation to more specifically assess attitudes and beliefs regarding SCD and perceived barriers to SCD education and awareness. Thirty-five African-American adult men and women participated in one of four focus groups. Thematic analysis identified that both prenatal testing and newborn screening are acceptable forms of genetic testing. Based largely on their personal experiences, participants possessed an understanding of the natural progression of SCD but had a limited understanding of the inheritance and probable risk of giving birth to a child with the disease. Barriers to education and greater awareness of SCD were classified as personal, familial, and societal. Community based interventions focused on sharing the stories of individuals with first-hand experiences with SCD should be considered.