Formative research regarding social support programs and young adults living with type one diabetes

Abstract

Little research has been conducted regarding social support programs (SSPs) for young adults with Type 1 Diabetes Mellitus (T1DM). Formative research was conducted including: in-depth interviews with individuals who have organized or lead SSPs, a survey of young adults with T1DM, and forming a community advisory board to develop themes and discussion points for a SSP. Eight interviews were conducted. The perceived benefits of and barriers to attending a SSP, the perceived barriers to managing a SSP, and topics important for young adults were described. 38 individuals completed the survey and were included in the analysis. The survey identified ever attended a SSP as significant in the perception of tangible and affectionate support. Two CAB meetings resulted in six themes and discussion points to be used as a framework for a proposed SSP. This study suggests the benefit of SSPs for young adults and provides insight into the role of SSPs in managing T1DM.