Minority Health and Health Equity Archive
Permanent URI for this collectionhttp://hdl.handle.net/1903/21769
Welcome to the Minority Health and Health Equity Archive (MHHEA), an electronic archive for digital resource materials in the fields of minority health and health disparities research and policy. It is offered as a no-charge resource to the public, academic scholars and health science researchers interested in the elimination of racial and ethnic health disparities.
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Item The Marriage of Community-based Participatory Research and Practice-based Research Networks: Can It Work? -A Research Involving Outpatient Settings Network (RIOS Net) Study(2009) Williams, R. L.; Shelley, B. M.; Sussman, A. L.BACKGROUND: Interest in community-based participatory research (CBPR) has surged during the last several years because of its potential to enhance the quality and usefulness of research outcomes. Practice-based research networks (PBRNs) potentially can provide a bridge between the research endeavor and communities; PBRNs have been identified as a promising venue for CBPR. However, this marriage of CBPR and PBRNs faces many challenges, such as locus of project idea generation, time constraints, and funding limitations. METHODS: This was a case study of the application of the CBPR model and CBPR principles specific to PBRN research using a recent PBRN study of communication about traditional, complementary, and alternative medicines. RESULTS: Challenges (eg, added cost, time) and benefits (eg, improved research data collection process, enhanced data analysis) resulted from application of the CBPR model and are detailed. CONCLUSIONS: For practical and ethical reasons, PBRNs need to adopt the CBPR approach for certain types, if not all, of their research. This might require operational adaptations by the PBRN (eg, a community advisory board, community membership in the network board of directors, and outreach to community groups for input into network priorities) as well as dedicated time and funding.Item Community-Based Participatory Research as Worldview or Instrumental Strategy: Is It Lost in Translation(al) Research?(2011) Trickett, E. J.Community involvement in community-wide interventions is important for a variety of scientific, ethical, and pragmatic reasons. However, the specific meaning of community involvement depends on the details of how it is enacted. Katz et al. outline an ambitious effort to blend the science of randomized controlled trials (RCTs) with the processes of community-based participatory research (CBPR) in translational research. RCTs provide the science, while CBPR provides the processes of tailoring and implementation. Katz et al. offer a detailed example of how research might occur through the use of community portals and community health advisors as local advocates for the delivery of interventions. Their examples are rich and raise fundamental issues regarding the importance of CBPR and the role of local participation in translational research more generally.Item The Power and the Promise: Working With Communities to Analyze Data, Interpret Findings, and Get to Outcomes(2008) Cashman, S. B.; Adeky, S.; Allen, A. J.; Corburn, J.; Israel, B. A.; Montano, J.; Rafelito, A.; Rhodes, S. D.; Swanston, S.; Wallerstein, N.; Eng, E.Although the intent of community-based participatory research (CBPR) is to include community voices in all phases of a research initiative, community partners appear less frequently engaged in data analysis and interpretation than in other research phases. Using 4 brief case studies, each with a different data collection methodology, we provide examples of how community members participated in data analysis, interpretation, or both, thereby strengthening community capacity and providing unique insight. The roles and skills of the community and academic partners were different from but complementary to each other. We suggest that including community partners in data analysis and interpretation, while lengthening project time, enriches insights and findings and consequently should be a focus of the next generation of CBPR initiatives.