Developing Culturally Sensitive Cancer Genetics Communication Aids for African Americans

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dc.contributor.authorBaty, Bonnie Jeanne
dc.contributor.authorKinney, Anita Yeomans
dc.contributor.authorEllis, Sara Marie
dc.date.accessioned2019-08-14T14:58:56Z
dc.date.available2019-08-14T14:58:56Z
dc.date.issued2003
dc.description.abstractThe goal of this project was to develop educational materials to communicate genetic health information in a culturally sensitive manner. These materials were designed to communicate information about cancer risk, genetic testing options, and health management options in an African American kindred with a known BRCA1 mutation. Educational materials were pilot-tested in four African American focus groups varying in socioeconomic status and gender. The audiotaped focus groups consisted of presentation of the educational materials, followed by a feedback session led by an African American facilitator. Qualitative analysis of the focus group transcripts identified important themes and the educational materials were revised in response to the participants’ suggestions. The products included a booklet and a flip chart for use in educational sessions. Focus group participants recommended a substantial reduction in technical detail, and recommended that information be personalized and made relevant to the lives of the target population. Other critical themes included the importance of building trust in the medical system and avoiding words and images that have strong negative associations in the African American community. Strategies that were successful included nontechnical images to explain genetic concepts, clip art images to energize and personalize word slides, vibrant color, identifiably African American figures, and the development of themes relevant to many African Americans. The use of these materials in an ongoing study offering BRCA1 counseling and testing to a large, rural Louisiana-based kindred will provide additional feedback about the effectiveness of the culturally tailored genetic educationand counseling materials.
dc.description.urihttps://onlinelibrary.wiley.com/doi/abs/10.1002/ajmg.a.10150
dc.identifierhttps://doi.org/10.13016/cci3-ur7s
dc.identifier.citationBaty, Bonnie Jeanne and Kinney, Anita Yeomans and Ellis, Sara Marie (2003) Developing Culturally Sensitive Cancer Genetics Communication Aids for African Americans. American Journal of Medical Genetics, 118A. pp. 146-155.
dc.identifier.otherEprint ID 292
dc.identifier.urihttp://hdl.handle.net/1903/22462
dc.subjectCancer
dc.subjectoutreach
dc.subjectinterventions
dc.subjectservice
dc.subjectGenetics and Race
dc.subjectRisk Management
dc.subjectcancer genetics
dc.subjectrisk communication
dc.subjectAfrican American health
dc.subjecteducation
dc.subjectcultural sensitivity
dc.subjectgenetic counseling
dc.subjectfocus groups
dc.subjectBlack health
dc.subjectAfrican American
dc.subjectBlack
dc.titleDeveloping Culturally Sensitive Cancer Genetics Communication Aids for African Americans
dc.typeArticle

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