The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples

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dc.contributor.authorMello, Michelle M.
dc.contributor.authorWolf, Leslie E.
dc.date.accessioned2019-08-14T15:02:01Z
dc.date.available2019-08-14T15:02:01Z
dc.date.issued2010
dc.description.abstractOn April 20, 2010, Arizona State University (ASU) agreed to pay $700,000 to 41 members of the Havasupai Indian tribe to settle legal claims that university researchers improperly used tribe members’ blood samples in genetic research. The settlement closes a difficult chapter for both parties but leaves open a bedeviling question for genetic research: What constitutes adequate informed consent for biospecimens collected for research to be stored and used in future, possibly unrelated studies? The case illuminates the clashing values that have driven debate in this area and the importance of understanding the study population’s perspectives.
dc.description.urihttps://www.nejm.org/doi/full/10.1056/NEJMp1005203?query=current&rss=1
dc.identifierhttps://doi.org/10.13016/uhzx-uzv6
dc.identifier.citationMello, Michelle M. and Wolf, Leslie E. (2010) The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples. The New England Journal of Medicine, 363. pp. 204-207.
dc.identifier.otherEprint ID 2395
dc.identifier.urihttp://hdl.handle.net/1903/23133
dc.subjectBioethics
dc.subjectResearch
dc.subjectGenetics and Race
dc.subjectHavasupai Indian tribe
dc.subjectgenetic research
dc.subjectinformed consent
dc.subjectbiospecimens
dc.titleThe Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples
dc.typeArticle

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