African Americans' views on research and the Tuskegee Syphilis Study

dc.contributor.authorFreimuth, Vicki S.
dc.contributor.authorQuinn, Sandra Crouse
dc.contributor.authorThomas, Stephen B.
dc.contributor.authorCole, Galen
dc.contributor.authorZook, Eric
dc.contributor.authorDuncan, Ted
dc.date.accessioned2019-08-14T15:00:00Z
dc.date.available2019-08-14T15:00:00Z
dc.date.issued2001
dc.description.abstractThe participation of African Americans in clinical and public health research is essential. However, for a multitude of reasons, participation is low in many research studies. This article reviews the literature that substantiates barriers to participation and the legacy of past abuses of human subjects through research. The article then reports the results of seven focus groups with 60 African Americans in Los Angeles, Chicago, Washington, DC, and Atlanta during the winter of 1997. In order to improve recruitment and retention in research, the focus group study examined knowledge of and attitudes toward medical research, knowledge of the Tuskegee Syphilis Study, and reactions to the Home Box Office production, Miss Evers' Boys, a fictionalized version of the Tuskegee Study, that premiered in February, 1997. The study found that accurate knowledge about research was limited; lack of understanding and trust of informed consent procedures was problematic; and distrust of researchers posed a substantial barrier to recruitment. Additionally, the study found that, in general, participants believed that research was important, but they clearly distinguished between types of research they would be willing to consider participating in and their motivations for doing so.
dc.description.urihttp://www.sciencedirect.com/science/article/pii/S0277953600001787
dc.identifierhttps://doi.org/10.13016/3ajo-ilek
dc.identifier.citationFreimuth, Vicki S. and Quinn, Sandra Crouse and Thomas, Stephen B. and Cole, Galen and Zook, Eric and Duncan, Ted (2001) African Americans' views on research and the Tuskegee Syphilis Study. Social Science and Medicine, 52. pp. 797-808.
dc.identifier.otherEprint ID 659
dc.identifier.urihttp://hdl.handle.net/1903/22694
dc.subjectHealth Equity
dc.subjectPublic Health
dc.subjectResearch
dc.subjectAfrican Americans
dc.subjectClinical trials
dc.subjectRecruitment
dc.subjectTuskegee study
dc.subjectUnited States
dc.titleAfrican Americans' views on research and the Tuskegee Syphilis Study
dc.typeArticle

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