A National Dialogue on Genetics and Minority Issues

Abstract

This paper summarizes two-day deliberations on issues of genetic services and diverse communities, attended by experts representing genetic consumers, representatives of diverse communities and genetic providers/scientists. The discussions held in round table dialogue sessions focused on the following subjects: Inclusion of ethnic/racial minorities in bio-medical research; ensuring minority access to genetic services; consumer protection in genetic testing and empowering minority communities to take part in genetic research and service provision. The discussions are vividly illustrated by the presentation of numerous quotes obtained from transcripts of the sessions held. The paper concludes with useful recommendations for genetic providers, educators, scientists, and policy makers on the issues of involving diverse communities in the various aspects of the new genetics.