“What Are They Going to Do With the Information?” Latino/Latina and African American Perspectives on the Human Genome Project

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dc.contributor.authorSchulz, Amy
dc.contributor.authorCaldwell, Cleopatra
dc.contributor.authorFoster, Sarah
dc.date.accessioned2019-08-14T14:59:15Z
dc.date.available2019-08-14T14:59:15Z
dc.date.issued2003
dc.description.abstractNewdevelopments in genetic science raise questions regarding their application and implications. Dialogue about these questions has not often included the perspectives of the general population and, in particular, the voices of labeled racial or ethnic groups. In this article, the authors present results from an analysis of data from focus group discussions that engaged African Americans and Latinos/Latinas in a discussion of genetic research and technology. In particular, the authors focus on questions of inequality that arose in those focus groups and their implications for public health professionals interested in addressing pervasive racial disparities in health. In addition, they present strategies for achieving a more equitable distribution of risks and benefits from genetic research and technology suggested by participants in these focus groups.
dc.description.urihttps://journals.sagepub.com/doi/abs/10.1177/1090198102251026
dc.identifierhttps://doi.org/10.13016/ngqo-d91q
dc.identifier.citationSchulz, Amy and Caldwell, Cleopatra and Foster, Sarah (2003) “What Are They Going to Do With the Information?” Latino/Latina and African American Perspectives on the Human Genome Project. Health Education and Behavior, 30 (2). pp. 151-169.
dc.identifier.otherEprint ID 426
dc.identifier.urihttp://hdl.handle.net/1903/22530
dc.subjectHealth Equity
dc.subjectDisparities
dc.subjectResearch
dc.subjectGenetics and Race
dc.subjectracial disparities
dc.subjectHispanic perspectives on genetics
dc.subjectAfrican American perspectives on genetics
dc.subjectperspectives on genetics
dc.title“What Are They Going to Do With the Information?” Latino/Latina and African American Perspectives on the Human Genome Project
dc.typeArticle

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