Ethics of Health Research in Communities: Perspectives From the Southwestern United States

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dc.contributor.authorWilliams, R. L.
dc.contributor.authorWillging, C. E.
dc.contributor.authorQuintero, G.
dc.contributor.authorKalishman, S.
dc.contributor.authorSussman, A. L.
dc.contributor.authorFreeman, W. L.
dc.date.accessioned2019-08-14T15:03:11Z
dc.date.available2019-08-14T15:03:11Z
dc.date.issued2010
dc.description.abstractPURPOSE: The increasing attention paid to community-based research highlights the question of whether human research protections focused on the individual are adequate to safeguard communities. We conducted a study to explore how community members perceive low-risk health research, the adequacy of human research protection processes, and the ethical conduct of community-based research. METHODS: Eighteen focus groups were conducted among rural and urban Hispanic and Native American communities in New Mexico using a semistructured guide. Group transcriptions were analyzed using iterative readings and coding, with review of the analytic summary by group members. RESULTS: Although participants recognized the value of health research, many also identified several adverse effects of research in their communities, including social (community and individual labeling, stigmatization, and discrimination) and economic (community job losses, increased insurance rates, and loss of community income). A lack of community beneficence was emphasized by participants who spoke of researchers who fail to communicate results adequately or assist with follow-through. Many group members did not believe current human research and data privacy processes were adequate to protect or assist communities. CONCLUSIONS: Ethical review of community-based health research should apply the Belmont principles to communities. Researchers should adopt additional approaches to community-based research by engaging communities as active partners throughout the research process, focusing on community priorities, and taking extra precautions to assure individual and community privacy. Plans for meaningful dissemination of results to communities should be part of the research design.
dc.description.urihttp://dx.doi.org/10.1370/afm.1138
dc.identifierhttps://doi.org/10.13016/frpe-rfuo
dc.identifier.citationWilliams, R. L. and Willging, C. E. and Quintero, G. and Kalishman, S. and Sussman, A. L. and Freeman, W. L. (2010) Ethics of Health Research in Communities: Perspectives From the Southwestern United States. The Annals of Family Medicine, 8 (5). pp. 433-439.
dc.identifier.issn1544-1709
dc.identifier.otherEprint ID 2753
dc.identifier.urihttp://hdl.handle.net/1903/23407
dc.subjectBioethics
dc.subjectResearch
dc.subjectmethodologies
dc.subjectPrinciple-based ethics
dc.subjectconfidentiality
dc.subjectthird-party consent
dc.subjectcommunity-based participatory research
dc.subjectprivacy
dc.titleEthics of Health Research in Communities: Perspectives From the Southwestern United States
dc.typeArticle

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