Are we safe? Seeking information and knowledge sharing by individuals with hidden disabilities

Abstract

This study explores how individuals with invisible disabilities seek, access, and utilize information across medical and online platforms. This article uses research and studies conducted that examined the life-world of people living with or who have lived with invisible disabilities to examine the motivations, barriers, and strategies that shape their information behavior. Data were analyzed to identify key patterns of information needs, value, and trust. Findings suggest that individuals prefer informal sources over formal sources and report to social media to seek new information rather than their General Practitioners. The study conducted should be beneficial to information and medical professionals to better understand the needs of those with invisible disabilities. However, future research should be conducted to better understand those who avoid or are unsure of how to seek out their information needs.